Tools from the NH Council
Communicating with Schools
Supporting a patient with ASD often involves fielding questions from the child's early intervention or special education team. Sometimes these communications are filtered through the parents, who act as the bridge between the physician and the school. At other times, doctors and schools swap long reports without narrowing down the information to the key questions or recommendations. To help streamline the important link between educators and healthcare providers, the NH Council on ASD has crafted a standardized form. While developed for children with ASD, this tool is appropriate for children with any type of special healthcare need.
New Hampshire has several laws requiring that state-regulated insurance policies cover evidence-based treatments for ASD, including Applied Behavior Analysis (ABA). Not all polices, however, are subject to state regulation. For a brochure explaining health insurance coverage for ASD, link here.
NH Registry for ASD
Autism Spectrum Disorder is a mandated reporting category in NH. A physician, licensed clinical psychologist, or other healthcare professional that diagnoses a NH resident with ASD must report that diagnosis to the NH Registry for ASD using an online reporting form, linked here. Names and other identifying information are not reported. For families that have questions about the Registry, a brochure is available, linked here.
New Hampshire Council on Autism Spectrum Disorders
Putting the Pieces Together in the Granite State
Learn the Signs. Act Early.
As part of the Learn the Signs Campaign, the Centers for Disease Control and Prevention have collected and created many resources for pediatric healthcare providers. Based on AAP guidelines, these materials are designed to make early, periodic screening a seamless part of pediatric care and to help providers communicate effectively with parents about child development. Many of these handouts are discussed in more detail in the Autism Case Training (ACT) modules that are the professional development component of the campaign. All CDC materials are FREE, and many are available in Spanish.
Early Warning Signs of Autism
Developmental Milestones, 2 mo. to 5 years, link here. Additional Resources, list from ACT Training, link here.
Screening for Autism
Surveillance and Screening for Autism, AAP Algorithm, link here AAP Developmental Screening Policy Statement (July '06), link here
Communicating Concerns: Screening & Diagnosis Results
Explaining the Results of a "Failed" Screen, link here.
Sugar-coaters and Straight-talkers Journal Article
Making a Diagnosis
Differential and Etiological Diagnosis of ASD, link here
DSM 5 Criteria for ASD:
Components of a Comprehensive Evaluation for ASDs, link here.
Early Interventions and Education
NH Early Intervention and Services, Directory, link here
RESOURCES, Pediatric Healthcare Providers
for Pediatric Healthcare Providers
Additional Resources, by topic
National Center for Medical Home Implementation, Autism Information
Complementary and Alternative Medicine (CAM)
The Interactive Autism Network (IAN) has catalogued more than 100 different treatments that parents have reported using to address the core symptoms of their child's autism. The vast majority of these are not evidence-based, and some, like chelation, are dangerous. Research suggests that anywhere from 30 to 97% of families use at least one CAM treatment for their child with ASD. Even the most benign of these can divert resources from more conventional treatments that have been shown to improve communication, social function, and behavior in children with ASD.
In talking compassionately with families about the risks and benefits of CAM treatments, it may be helpful to be familiar with the most commonly employed. The Treatment Advisory Board of Autism Speaks has developed a brief review of the most common CAM treatments. The Autism Science Foundation has information about some of the most concerning practices that are marketed to families as a "cure" for ASD.
- Autism Speaks, regarding CAM treatments, link here.
Treatments for Autism Spectrum Disorders (this section not drafted yet)
Yale Child Study Center, Video presentation by Prof. Fred Vokmar
Autism is a diagnosis that represents many symptoms and behavioral tendencies, some of which can lead to serious health and safety risks including death. To learn more:
- NH "Safety First" Booklet, coming soon.
- National Autism Association Safety Campaign, link here
- Brochure for Families about Wandering, link here,
Vaccines and Autism
Despite numerous studies to the contrary, parents continue to hear that childhood vaccines may cause autism. The AAP has issued several policy statements on this subject, and the Autism Science Foundation has developed a well organized review of the the relevant research. In addition, the AAP has information for parents in both print and audio.
- AAP, Facts for Parents about Autism and Vaccine Safety, link here.
- AAP, Sound Advice on Vaccines, audio interviews designed for parents, link here.
- Additional Resources from the Immunization Action Coalition, link here.
The NH Council on Autism Spectrum Disorders
21 S. Fruit Street
Concord, NH 03301
Copyright (c) 2012 NH Council on ASD, all right reserved